Jono Lancaster is back on our screens in So What If My Baby Is Born Like Me?

Following on from the documentary Love Me, Love My Face featuring Jono LancasterSo What If My Baby Is Born Like Me? is the latest offering from the BBC, and looks at the dilemma parents with hereditary disabilities face when deciding whether to have children.

So What If My Child Looks Like Me- Jono Lancaster - image - inspiremagazineuk.wordpress.com

Jono Lancaster, 26, was born with Treacher Collins syndrome, a disability that has a 50% chance of being passed on to his children. Having faced hardship as a child, Jono and long-term girlfriend Laura, are unsure of whether to risk passing this disability, and its inherent problems, on to their child.

Trying to decide the right path, the programme sees the couple visit other families having faced this decision, as well as children with Treacher Collins syndrome and adults who have coped through adolescence living with the disability, and are happily out the other side!

Watch on BBC 3 tonight (19th April) at 9pm to learn a little more about this tough decision that so many face.

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April 19, 2011. Tags: , , , , , , , , , , . Entertainment. 13 comments.

Disability blog watch – Reflections on Treacher Collins syndrome

Trawl the Internet for just one moment and you will come across a great variety of fantastic disability-related blogs and personal websites. With that in mind, I thought I would start a regular post introducing you to some of the best and most inspiring entries.

I start with the personal website Reflections on Treacher Collins syndrome by Amie. If you read my last post about Jono Lancaster and the documentary Love Me, Love My Face, you’ll know that Treacher Collins syndrome is a condition from birth that distorts the growth of cheekbones.

Amie, who is in her own words ‘your typical, garden-variety human being’, a physician and married with two cats, also has Treacher Collins syndrome.

Her site is a great resource for others who might be struggling with the condition, with a focus on personal achievement and building confidence. It includes valuable links to other inspirational articles that have helped Amie cope with the way people view her and Treacher Collins syndrome. She even has a top ten brilliant reasons why she loves being different. And as the initial page on her site asserts, ‘what matters most is how you see yourself.’

Amie - Treacher Collins syndrome - image - inspiremagazineuk.wordpress.com

If you have an inspiring personal blog or know of one you would like me to feature please contact me at inspiremagazineuk@googlemail.com. Or follow me on Twitter and Facebook.

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December 13, 2010. Tags: , , , , , , , . Inspiration. 7 comments.